Brooke's Story
 
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Brooke turned 1 year old on the 11 feburary 2010.  What a milestone. Everyone had told us that the first year would be the toughest of her life and I sure hoped that was going to be the case. If she could get through that, she can get through anything.

She has started eating some solid foods, 3 tiny bites is a huge deal in our house.  She chokes often because she still has an open cleft so grabbing the baby, tilting her upside down and performing back blows is a normal occurance at the dinner table At around 16 months she started taking her bottles during the day and only needed the tube at night time making life so much easier.

In may she became unwell and was admitted breifly 3 times,  then as winter grew colder and the bugs started swarming she became very unwell with Adenovirus and needed admitted and put on oxygen. That was the beggining of august, then late August she got R.S.V, and was re admitted,  then mid September she got very sick once again and her H1N1 swab came back positive. I had been worried about H1N1 when she was tiny, I was terrified it would take her from us. She was a very sick little girl and needed to be put into the High Dependancy Unit for 4 days and for 2 of those days I was unsure we would be bringing her home with us this time. But my little Brooke is a fighter and she got though!

This little girl is just amazing. She now has a killer grin and the funniest little quirks. Shes happy and bubbly, everyone that gives her a chance loves her. She began bum shuffleing at 17 months and is so pleased that she can do things for herself and get into whatever she likes. I was overjoyed when she started, I was really worried that her lack of interest in moving was going to mean something for her intelect but now shes off and you can see the spark in her. She is no ones fool.

As far as she is going with her medical bits and pieces:
She had an M.R.I at 18 months that showed brain damage and explains the weak left side.
She still has no diagnosis, we saw the genetics people at 16 months and they have decided to let her grow and re visit the causes of her multiple problems in 2 years time.
She was due to have her cleft fixed in August but that has been put off till latewr in the year, possibly December, January or February.
It will be great to have it fixed, but I am not looking foward to the actual surgery. Poor wee brooke will go into hospital happy and healthy and be made sore and miserable again. I hate that.
She will have grommets inserted at the time of the cleft surgery and the dr is hopeful that her hearing may improve.

At 18 months brooke is in 3-6 month clothing, bumshuffeling around the house, walking with the help of a walker, slapping her brother and sister in the face and laughing, wearing her hearing aids almost all day, sleeping as poorly as ever, kissing and showing huge amounts of affection, showing interest in everything going on around her and using her voice to make more sounds and has discovered that the jolly jumper is awesome fun. 

As I finish writing up to 18 months, she is 5 days away from being 20 months old. I started this blog quite late in the peice but from now on I can write things up to date as they happen.



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